December 05 , 2009

A Twisted Fate

My life with Dystonia


Brenda Currey Lewis was a typical, active child. But when she was seven years old her life changed dramatically. Generalized dystonia (dystonia musculorum deformans) turned her muscles against her. This rare neurological movement disorder causes muscle groups to tug and twist the body into abnormal postures. Brenda started walking on the outer edge of her right foot, and within a year she was wheelchair bound. The symptoms gradually spread through most of her body. For almost forty years Brenda has experienced uncontrollable muscle movements that have wreaked havoc in her body, but not her spirit. This is a story of resilience in the face of a little-known, confusing, and debilitating condition. The author takes you on a journey from skating rinks to surgical suites, from bicycles to wheelchairs, from doubt to determination. Brenda’s quirky sense of humour makes this candid account of life with dystonia a thought-provoking and an entertaining read.

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