Home » Nonfiction » Darlene Loftis » Living With MEN Type-1

October 29 , 2007

Living With MEN Type-1


This book details the experiences of a mother and her two daughters who have inherited a disease called Multiple Endocrine Neoplasia or MEN Type-1. The gene of this disease is believed to be carried by males. MEN Type-1 affects many organs in the body such as the thyroids, pituitary gland, liver, gallbladder, spleen, pancreas, and the kidneys, but is difficult to diagnose. As a result, the family received many terrible diagnoses before the cause of their pain was identified. Over activity of the endocrine system is one symptom considered when diagnosing MEN Type-1. All three women showed this symptom by the age of 30, and received some frustrating explanations for their problems. At times they were accused of exaggerating their pains to gain personal attention. There were times when seeking care, the threat of death knocked at their door. Many physicians have told them, “I’ve read about MEN Type-1, but never treated a patient with it.” Nevertheless, all have shocked many of their physicians and surgeons with their progress. There is not a cure for this rare disease, but with the right treatments and medications people with MEN Type-1 can live for a long time.

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